tag:blogger.com,1999:blog-6543194014481451384.post5895126487642766364..comments2023-08-07T04:19:14.746-07:00Comments on Trials and Stimulations with Occipital Nerve Stimulation Surgery: SilenceNutmeg04http://www.blogger.com/profile/17589205769884773878noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-6543194014481451384.post-61446317630614517282012-09-26T15:49:03.893-07:002012-09-26T15:49:03.893-07:00I only have a supraorbital stimulator (think direc...I only have a supraorbital stimulator (think directly above the eyebrow). Since I have Hemicrania Continua my headaches are located solely in that one area. I actually think my stimulator is doing that "cross talk" you spoke of. When I turn it on it hits nerves in my scalp. I was thinking with my next revision possibly getting a occipital nerve stimulator too. My neurosurgeon didn't want to put in both because it would have been too difficult to position me during surgery. What are you going to do with your stimulator? Perhaps a revision?<br /><br />Thanks for the lead on the doctor in San Francisco! I'll have to look him up. It's so difficult trying to find a competent doctor/neurosurgeon. I've actually found it harder than finding a good partner!Nutmeg04https://www.blogger.com/profile/17589205769884773878noreply@blogger.comtag:blogger.com,1999:blog-6543194014481451384.post-34494811551565250612012-09-23T03:35:33.097-07:002012-09-23T03:35:33.097-07:00So sorry you are getting the doctor run around. I...So sorry you are getting the doctor run around. I have heard about people having problems with stimulator placement. I have not had ANY issues, but I only have one lead to the left occipital nerve. After a year of constant use it started to "cross talk" to the trigemenal and supraborbital/facial nerves. <br />My implant was done by a pain management specialist at the Cleveland Clinic. If you are looking in San Francisco, Dr. Goadsby practices there. Good luck getting your programs fixed. Do you also have an occipital lead? Just wondering if you do if someone could turn off the painful supraorbital lead and leave the occipital one....WinnyNinny PooPoohttps://www.blogger.com/profile/13237156887425609665noreply@blogger.com